What he initially thought was carpal tunnel syndrome turned out to be Parkinson's disease (PD). Ben Irvin, 35, worked in call centres, answering calls pertaining to work cover. He knew he had a family history of PD, but never imagined that he would be afflicted by the same condition.
“In 2020, I went to a specialist for nerve testing. After looking at the results, I was told I had PD,” he said.
“The doctor mentioned that he could even tell by the way I walked.”
PD is a progressive disorder that affects the nervous system, and the parts of the body controlled by the nerves. Symptoms are gradual and may initially be barely noticeable, but will eventually result in movement pains, poor mental health and impaired sleep, among other health issues. Within the PA Hospital, Dr Alexander Lehn leads the movement disorders service, and together with Associate Professor Sarah Olson, they run the deep brain stimulation (DPS) service.
Following his life-changing diagnosis, Ben was referred to the PA Hospital where his doctors informed him about DPS surgery and recommended him as a potential candidate. The procedure involved implanting a neurostimulator and electrodes that send electrical impulses to specified targets in the brain responsible for movement control.
“I was told by both my former doctor and the specialists at the hospital that this would be my best option.”
The surgery was indeed successful and allowed Ben to regain control over his life.
“I did not have to rely as much on my medication which I previously had to take regularly and at specific times of the day. On some days, not on purpose, I even forget to take my medicine, but the symptoms remain manageable.”
“I was also able to move more and with greater ease. I can sit longer at my desk without going stiff. I can type easier and for longer too. This allowed me to return to my job,” he added.
Now hopeful the surgery has been effective, and he will continue to hear positive news at each subsequent check-up, Ben remains grateful to Dr Lehn and his team for all the care and treatment he received.
“I am definitely grateful for the care I’ve received and the consistent check-ins from the hospital,” he said.
“You turn up for brain surgery feeling worried and uneasy; not knowing the outcome or what’s about to happen.”
“The team supported me each step of the way and made me feel confident and secure throughout the process. Despite the severity of brain surgery, being what it is, the overall experience was a great one to have.”
“I now have a greater opportunity to try new things. It’s just me going about my day, and suddenly, things are different, I’m different.”
You can support research and clinical work like the surgery that has helped Ben Irvin here.